Parents of children with special healthcare needs face many challenges. Uncommon Beauty—Crisis Parenting from Day One is the guidebook written by a mom who’s been there. Author Margaret Meder delivers specific, pragmatic strategies for everything from crossing emotional hurdles to handling financial realities; from navigating hospitals to becoming your child’s best advocate; from accepting the help of others to finding an inner strength. Meder’s down-to-earth wisdom comforts and empowers the parents who need it the most, and her words of hope reveal the secret to living a life more meaningful than ever thought possible. Discover the truth of Uncommon Beauty.
About the Author
Margaret Meder grew up in Madison, Wisconsin. She attended the University of Wisconsin-Madison, earning a bachelor of music degree in 1990. She spent the next sixteen years teaching general and vocal music in the public schools and private lessons. During this time she worked with young children, teenagers, and individuals with special needs. Expanding on these experiences as an educator and musician, Margaret served three years as development director for a nonprofit fine arts organization.
Discovering a void in practical resources on how to survive as a parent of a medically fragile child, Margaret combined her education skills, her love of writing, and her own experiences to create this resource. Her mission is to create accessible resources that provide information, understanding, and inspiration for all parents who find themselves in similar situations. While raising her two children, Margaret pursues the joys in her life: writing, gardening, singing, playing the piano, and—most of all—spending time with her family and friends.
What's Being Said
“I planned to read a chapter at bedtime but simply could not stop until I had finished Uncommon Beauty. All readers will learn how to lead more joyful, meaningful lives through Meder’s wise and insightful words. Her courageous and caring book is a treasure.”
—Joan Laffey, author of Saving Grace
“As a mother of a child with special needs, I know the feeling of being alone and lost. Uncommon Beauty offers readers a helping hand while navigating through times of uncertainty.”
—Alysia Hanson, RN
“Margaret Meder provides guidance and information to help parents cope and move forward, making the best decisions possible to care for their medically fragile children, their families, and themselves. . . . Uncommon Beauty touches the soul and nourishes the spirit.”
—Deborah Segersten, MSN, RN clinical nurse manager, Trauma and Trauma/Surgical IMC, UWHC Madison WI
“While advocating for her child and maneuvering through complex healthcare systems, Margaret Meder learned many lessons. She shares them here and provides concrete suggestions to help other parents cope with the emotional, psychosocial, and financial challenges of caring for a child with special healthcare needs, providing insights that only a parent who has walked that path could offer.”
—Barbara J. Byrne, DNP, RN, PNP-BC, director of Pediatric Nursing and Clinical Services, American Family Children’s Hospital
“This wise and beautifully written book provides a practical roadmap for parents navigating the first few years of ‘crisis parenting’ with a medically fragile child. I recommend Uncommon Beauty to parents, caregivers, healthcare professionals, and anyone interested in a story of courage, strength, and amazing resilience.”
—Erica Serlin, PhD, Family Therapy Center of Madison, Adjunct Clinical Faculty-Department of Psychiatry and Psychology, University of Wisconsin–Madison